Since Taylor's sever illness last fall.....we've been so very careful and we rarely take her out any longer.
But her sisters feel (and rightly so) that Taylor fought so hard and so valiantly to live, that she should DO SOME THINGS!
So on a recent outing, Taylor was so happy to just be doing something!
And her little sister, Jayda decided to share her sunglasses to let Taylor "be cool"
How fun is it to see Taylor, looking cool and out doing something.
And she loved it!
She reminds us that each moment is a gift and we should enjoy it all the time.
Taylor certainly enjoys her life and her sisters help.
Go enjoy your life...and help others enjoy theirs!
Thursday, May 3, 2012
Monday, April 23, 2012
Featured Article in The Arrow
Taylor once again brings inspiration to others. Does that surprise you? You CAN be an inspiration to others, no matter what obstacles YOU personally face! Taylor has brought so much to our lives....and we hope to yours.
Taylor has taught us tremendous perspective. So much that we found that my husband had a
hidden talent, author! He’s written a
book called “Gaining Perspective, Lessons I’m learning from Taylor ” (available on Amazon and for Kindle!)
Our
daughter, Taylor, was born with “special needs”. When she was first born, the pediatrician
told us there “may” be something wrong and it appeared that she had “low muscle
tone”.
How
could that be? We were both only 24
years old. My husband, David, was a
health freak, not eating sugar, caffeine or alcohol and going to the gym 5 days
a week. I followed every step of the
doctor’s advice. I ate what I was
supposed to, didn’t touch what I wasn’t supposed to and here we were, being
told our baby could have challenges.
After
exhaustive tests, we discovered that Taylor
had a rare (only 60 known cases in the world) chromosome disorder and no one
knew her future.
So
we were thrust into a world we barely knew existed. Taylor
was constantly sick and in the hospital with pneumonia. And when she wasn’t sick, she was in every
physical and occupational therapy program available.
Two
happy go lucky college sweethearts who never faced a serious challenge now were
forced to be ferocious advocates for their daughter, questioning every medical “expert” and their
latest attempt to help Taylor. We were
constantly told that we were doing the wrong thing, told our daughter could die
and “did we really want that to happen?”
Most times, when we felt Taylor
didn’t need something, we were right.
The few times the doctors did things we didn’t think she needed, she got
very ill.
We
were talked into a $15,000 wheelchair that Taylor was unable to use and we donated it
shortly after purchasing it. We were convinced to give her a vaccine which
landed her in the hospital for two weeks.
But
through all the trials, tears and frustrations, we learned a lot about life and
changed our views on a lot of things.
When
Taylor was
four, we started a charity called Bids for Kids. This was to benefit the
Children’s Therapy Department at Mary Bridge Children’s hospital in Tacoma Washington . This event has led to the raising of over $1
million dollars. Even though we moved
away in 2000, this event is still carried on by amazing group of women now The
Jean Cunningham Orthopedic Guild.
Over
the years we have had the support of many friends and family. My best friend
from college also a Pi Phi (Marylou Hill Ferry) has been with us along our
journey. Many of my sorority sisters
live in different states but I continue to keep in touch and keep them informed
of Taylor ’s
health.
Over
the years our path has been made by Taylor ,
she shows us the way and we meet people because of her. She has been our
teacher and it’s amazing the things you can learn from a child who can not walk
or speak. But if you are ever so lucky to meet her or any child with special
needs you will soon find out what I mean.
We
moved our family to California , although our
business remains in Washington , for Taylor ’s health and found
that the best thing for her was dry air and sunshine (and it wasn’t too bad for
the rest of the family either).
We
learned that there are many families in similar or worse circumstances all over
the country. And there are many people
and organizations that do wonderful things for this population.
I
learned that I can administer shots, medicines, tube feedings and all the other
techniques for taking care of Taylor
that were completely foreign to me when she was born.
And
we learned most of all, to trust our instincts when it comes to raising a
daughter with special needs. There is no
handbook and each parent must forge their own path. And to every parent that is given one of
these very special people, you DO have the strength and the knowledge to do
what’s right. People often say we’re
amazing for what we do with Taylor . We do simply what needs to be done, and if
faced with a similar situation, you could too.
Monday, April 16, 2012
Happiness comes in strange places!
Taylor hasn't been sleeping well the last few months. Maybe it's because of all her new medications?
Maybe it's because the hospital bed she needs to sleep in isn't as comfortable as her old bed?
But maybe, just maybe, it's her renewed lease on life!
She came very close to the edge in September. And she knew it.
When she gets up now, she's "talking".....not with words, but with her happy sounds.
And she's laughing and smiling.
When Leslie or I go to check on her at 1, 3, 4 etc...how can you get upset by a smiling, laughing bubbly girl?
She instantly makes ME happy when I see how happy she is.
Are you being happy when you can't sleep? Maybe you should be because you're experiencing life! Are you making other happy by your actions? If you couldn't sleep would you complain to everyone about it, or would you make the most of your time awake?
Once again, Taylor is teaching us lessons about enjoying life!
Taylor hasn't been sleeping well the last few months. Maybe it's because of all her new medications?
Maybe it's because the hospital bed she needs to sleep in isn't as comfortable as her old bed?
But maybe, just maybe, it's her renewed lease on life!
She came very close to the edge in September. And she knew it.
When she gets up now, she's "talking".....not with words, but with her happy sounds.
And she's laughing and smiling.
When Leslie or I go to check on her at 1, 3, 4 etc...how can you get upset by a smiling, laughing bubbly girl?
She instantly makes ME happy when I see how happy she is.
Are you being happy when you can't sleep? Maybe you should be because you're experiencing life! Are you making other happy by your actions? If you couldn't sleep would you complain to everyone about it, or would you make the most of your time awake?
Once again, Taylor is teaching us lessons about enjoying life!
Monday, February 20, 2012
Happiness is around the corner
Taylor continually teaches me how to live. She has been very ill and most of her Doctors wrote her off this past September.
But she never gave up.
We brought her home and she continued to fight....where most of us would have quite.
She never gave up.
Maybe it's because she doesn't know what the odds were.
But she never gave up.
Maybe it's because she doesn't CARE what the odds are.
She never gives up.
And after fighting for her life the past 6 months, we threw her a party.
Because she never gave up.
She takes joy in the smallest things, she enjoys life;s simply pleasures. And as much as we all know we're supposed to do this, and throw ourselves into our celebrations and relly understand how special it is to be here enjoying our lives, how many of us do this?
Do YOU never give up?
Please learn from Taylor that the "experts" aren't always right. If YOU believe something can occur, do your best to make it happen.
NEVER give up!
But she never gave up.
We brought her home and she continued to fight....where most of us would have quite.
She never gave up.
Maybe it's because she doesn't know what the odds were.
But she never gave up.
Maybe it's because she doesn't CARE what the odds are.
She never gives up.
And after fighting for her life the past 6 months, we threw her a party.
Because she never gave up.
She takes joy in the smallest things, she enjoys life;s simply pleasures. And as much as we all know we're supposed to do this, and throw ourselves into our celebrations and relly understand how special it is to be here enjoying our lives, how many of us do this?
Do YOU never give up?
Please learn from Taylor that the "experts" aren't always right. If YOU believe something can occur, do your best to make it happen.
NEVER give up!
Friday, June 3, 2011
Graduation Dreams
I was reminded last night, of what opportunities are out there for SO many people, and yet, most squander those chances.
My 17 year old daughter, Tatum, graduated from high school last night. Quite an event, and I couldn't be prouder that she graduated in white (top 10% of the graduating class) and was ranked 38 out of 620 students! She is attending SDSU in the fall after mulling many choices.
I watched as the 600+ students spoke of the future, their plans and their dreams, I was reminded that NONE of these options were open to Taylor because of her disabilities.
And I'm saddened to think of how many of these kids will jump on the treadmill of gaining money to buy useless things we're all told we need.
My hope is that all these kids will each realize their passion and pursue it with vigor.
Graduating class of 2011....you have many years in front of you....and all the attributes and TIME you need to achieve what you want. Don't settle for meaningless pursuits.......remember the inspiration your felt on graduation night!
www.taylorsperspective.com
My 17 year old daughter, Tatum, graduated from high school last night. Quite an event, and I couldn't be prouder that she graduated in white (top 10% of the graduating class) and was ranked 38 out of 620 students! She is attending SDSU in the fall after mulling many choices.
I watched as the 600+ students spoke of the future, their plans and their dreams, I was reminded that NONE of these options were open to Taylor because of her disabilities.
And I'm saddened to think of how many of these kids will jump on the treadmill of gaining money to buy useless things we're all told we need.
My hope is that all these kids will each realize their passion and pursue it with vigor.
Graduating class of 2011....you have many years in front of you....and all the attributes and TIME you need to achieve what you want. Don't settle for meaningless pursuits.......remember the inspiration your felt on graduation night!
www.taylorsperspective.com
Friday, April 29, 2011
Don't forget to include others
Taylor was surrounded by 1000's of cheerleaders at her little sisters cheer competition in Anaheim.
And although there were literally 1000's of girls and two or three parents with each child, no one said hello to Taylor!
Now in their defense, they were all there for a competition....focus, drive etc.
But how many people have you passed by today that would have really enjoyed a hearty "hello"?
Did you make their day? Or did you only focus on yourself?
Don't forget, it doesn't take much to be nice to those around us and make them feel welcome!
And although there were literally 1000's of girls and two or three parents with each child, no one said hello to Taylor!
Now in their defense, they were all there for a competition....focus, drive etc.
But how many people have you passed by today that would have really enjoyed a hearty "hello"?
Did you make their day? Or did you only focus on yourself?
Don't forget, it doesn't take much to be nice to those around us and make them feel welcome!
Tuesday, March 29, 2011
What have you done to let someone assist you?
Taylor is soooo limited in her mobility, there's certainly not a lot she can do for herself.
But she does whatever she can to help me get her ready for her day.....she leans forward to let me brush her hair, she lays back to allow me to feed her.....happily relaxes as I dress her in the morning.
No complaints.....just happy for the assistance!
Did you seek counsel for a project that was troubling you? Or did you spurn advice that was freely offered out of pride?
There's a lot people can do to help....LET THEM!
Hope your day leads you to Gain Perspective!
But she does whatever she can to help me get her ready for her day.....she leans forward to let me brush her hair, she lays back to allow me to feed her.....happily relaxes as I dress her in the morning.
No complaints.....just happy for the assistance!
Did you seek counsel for a project that was troubling you? Or did you spurn advice that was freely offered out of pride?
There's a lot people can do to help....LET THEM!
Hope your day leads you to Gain Perspective!
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